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5 November 2025

15 years, 4 months to the day and a colonoscopy prep to celebrate!

A lot of uncertainty, not much within my control, but a lot of unwaivering support and faith

It came to me the other day that my last official working day was going to be literally 15 years and 4 months to the day! SOS was born on 5th July 2010. Fitting really.

The main questions that came from my last post that you may have also pondered, included:

1) What will you do in your first week or two of retirement.
Answer = rest, therapy, whatever falls out of the procedure tomorrow, Thursday 6th. In all reality that is all I can do for the remainder of the year and my entire focus is to be well enough to enjoy Xmas in Bargara with Jenbo's side of the family and Aunt Di for her 70th. First time since I was probably a teenager have we all got together!

2) How are you feeling about finishing up SOS.
Answer = a lot of emotions. I will miss the interactions with my clients who have become friends. I'm already missing the adrenaline and cortisol hit of the reactiveness of what comes in and how I can help others and solve problems. Super grateful to those who trusted me to help them and enjoyed sharing the experience of learning and growing together. Proud of how many people I got to help and touched by all of the thoughful messages, emails, calls, or video calls received since I made the announcement on how I helped them or what I did for them or how I changed their lives. It was a lot to take in for someone who has never been one to seek or need touching words. But I did lose my words (genuinely, not brain related!) during those interactions and got emotional at their emotion.

3) Where are things at with the insurance?
Answer = unknown but Trudy is helping me now given I didn't know what I was doing!

4) How will you not get swindled (like Pendlebury) when you get your payout and/or not end up buying that cadillac you've always wanted or a villa in Italy and not know you did it? (hahaha - all very valid!!)
Answer = Bloody good question and thanks to those who raised it. I've had my great friend (and lawyer) Kel help me with some practical strategies there and downloaded them to J&M tonight so they help me not forget to implement haha

5) What is the plan for the procedure on the 6th Nov?
Answer = I go in at 730am. I've got a support worker nurse taking me in and will stay until around 945. She will help advocate for my needs to try ensure a smoother experience and help with my short term memory recall issues.
I'm due in at 930am and scheduled to be in for an hour. They have prepped me for 0 - 5 nights stay, pending what they may/may not need to do surgically. Then I wait for biopsy results which could be weeks.
I'm going to John Flynn Private - my first experience on the GC and I've only heard good things. Elise & Scott and family live 3mins away and Elise will be getting the updates on my status and picking me up assuming its a day procedure only. Either her or I will do an update in the comments on this post. If I get to go home it should be around lunch time and I'll stay with Elise and the family that night for supervision :-)

6) How are you feeling generally?
A little weird. So many unknowns.
Unknown insurances and finances.
Unknown procedure outcomes.
Unknown if my brain will get the benefits from slowing up and resting.
Unknown if my short term memory recall will come back.
Unknown if my SPS and HSV in lungs will improve or steady with the new lifestyle.
Unknown what my new purpose will be. Some ideas on the back burner though.
Unknown how long it will take to get the adjustment of the adrenaline rush I got from SOS and be comfortable not getting it! The psychologist said maybe 2-3 months given what I used to do (wow, I'm already in past tense...'used to do'!).
Unknown when I'll have the energy and time to think about my purpose more and get it started.

Basically I have a blank canvas but a lot of unknowns before I get to start painting on it!!

What I do know is:
That it will likely be a couple of months feeling like this before things are known as advised by the psych.
That, I, Loren Downing, will need to be patient. Something I know I am not haha.
That I won't know any of the above without trying a different way of life. So here goes!
I have the best support crew going. Hands down. My NDIS squad all reminded me this last week that not many of their patients have the family and friends crew I have. Or the positive outlook on life and attitude to keep getting better. Or the sense of humour during tough times. Or the resilience to keep seeking more. That was reassuring and comforting to hear.

So together (you and them) we know I will be just fine and soon I'll be painting on my blank canvas.
I'm sure that there will be some exciting, random, and rewarding things to come and I'm impatiently waiting to find them and share them!!

Comments

Elise
Nov 08, 2025

As always Loz, such an inspiration. Time to 'work' on yourself for a while but I have doubt some projects will grab your interest and give you some healthy cortisol boosts along the way.


Bargara for Christmas is perfect timing.

Time to get the canvas and paint ready xx

Loren Downing
Loren Downing
Admin
Nov 10, 2025
Replying to

Thank you my friend and for regularly looking after me in so many ways!

It is thanks to friends like you that I can keep on getting up and going and continue to redefine who I am and what a good life can look like. xx


Lizzy
Nov 07, 2025

Just read last update and this one. As always, a big old dose of perspective given. How you haven’t hung the boots up before now blows me away - but at the same time, I know why you haven’t; that can-do attitude, incredible resilience and genuine love for helping others and solving their problems.

If this last year has taught me anything, it’s that life really is so short - drink the V, L & S, call that random number on the bus shelter and eat those non-cardboard pancakes (well, that’s if they don’t give you gut pains).

Hope to see retired Lozza soon.

Love you xx

Loren Downing
Loren Downing
Admin
Nov 10, 2025
Replying to

I think I'm like that footballer who didn't know when to call time and thought the rebirth of a spectacular season was just around the corner. Like a Jamie Elliot or Steele Sidebottom...but alas 🤣


Yes, a dose of perspective in the 'life is short' is usually what instigates change, and you certainly understand that. I've pivoted a few times with this motivator and am hoping this pivot is the one that brings the greatest rewards. Including a retired V,L&S with you in the next 12 months! Given my short-term memory recall issues, I'm probably already calling the bus shelter numbers 🤣 And I definitely think I should eat more pancakes without the cardboard haha


Love you too xxx


Trudi
Nov 06, 2025

Hope you are recovering well Loz! You are an artist in so many ways so I’m sure your next canvas (whatever it is), will be a master piece xx

Loren Downing
Loren Downing
Admin
Nov 10, 2025
Replying to

Thank you my friend. With and without SOS I think you will need to remain my GM 😂. Hope you are up for that. Although I might be harder to manage in this next phase!! But I'm sure it will be more fun. xx


Ros
Nov 06, 2025

Sending love Loz ❤️

Aunty Ros xxx


Loren
Nov 06, 2025

Procedure went pretty well. Found diverticular disease, A moderate sized 1st degree haemorrhoid treated with 3 bands, and the tear! Will follow up with Dr Reece for stool culture and a plan of attach on working out causes besides SPS.

Post Op didn’t go so well: I was deep in sleep and before the great nurse could cut my surgeon off at the pass to not startle me he had tapped me on the arm and woke me up to tell me about my surgery. So naturally I went into an SPS episode right there. Luckily I had packed all my medications in their boxes and they gave me breakthrough clonazapam but because it continued to get worse the nurse got the manager and anaesthetist and they gave me my own backyard Celine Dion intranasal midazolam concoction and the anaesthetist gave extra midazolam via my canalur. It lasted a couple hours. So now my legs are super weak but hopefully recover asap.

All in all it was nice to have a good team act reasonably quickly and do what I was asking. We discussed staying the night to manage it closely but decided the hospital environment would likely keep triggering it. So we hang around until I can prove I can use the bathroom and Elise will come get me.


Lady Kanti
Nov 06, 2025

Wishing you all the best and a speedy recovery. You can do this

lots of hugs


Mushy66
Nov 06, 2025

Everything crossed for today Loz! Big hugs 🤗🤗


Loren Downing
Nov 05, 2025

Checked in. Support worker already paid for herself. I had me living on a different street 😂 Elise is set up for text notifications and she’s already had one. This is refreshing!

The MOther Focker
Nov 05, 2025
Replying to

We are with you Loren.

Love you to the moon and back.

Look forward to our visit to the Piddle Pool


xxxJenbo


Loren
Nov 05, 2025
Replying to

Love you guys too. Can’t wait for Bargara. ECG done and all good as usual.

Bec my support worker has left now as I’ve moved to the next section. Anaesthetist next.


Rob D
Nov 05, 2025

Go gettem Lozza!

Loren Downing
Nov 05, 2025
Replying to

At it! And will gettem!!


Cien
Nov 05, 2025

I know two little cuties that will help you paint on that blank canvas and one in particular that will help with adrenaline outbursts 🦆


Looking forward to some holidays on holidays soon. "Aunty Lozza's must be loaded being on holidays all the time."


Love you Lozzas xx

Loren Downing
Nov 05, 2025
Replying to

Can’t wait for more time with both of them!! Love yas xox

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