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28 August 2023

Postive GAD-65 Antibodies - aka Stiff Person Syndrome

Positive blood test results....

Dr Reece called for my review given my weekends escalation. I noted that there was a marginal improvement and my lungs were feeling better for the blast.

During the call, he let me know the results came back positive to SPS and he was going to make some calls.

I felt relief to finally have some answers after 7 years of these spasms. My calves and achilles have been mostly locked for 7 years, with my torso and neck becoming more frequent.

We agreed the nebulisers we’re having a positive impact on my situation. Not massively, but some, and to continue every 4 hours until he'd made his calls and got another game plan.

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